Great Ormond Street Hospital has applied for a fresh hearing in the case of Charlie Gard following claims of “new evidence relating to potential treatment for his condition”.
Charlie Gard, who is 11 months old, has a rare disease called mitochondrial DNA depletion syndrome which causes progressive muscle weakness and brain damage.
“Two global hospitals and their researchers have told us in the last 24 hours that they have new evidence about experimental treatment proposed by them”. However, parental rights are not absolute, and in cases in which doctors and parents disagree, the courts may exercise objective judgment in a child’s best interest.
Charlie’s case garnered national sympathy last week after Pope Francis and President Trump expressed their support for the child and his family received almost $1.7 million in donations to take him across the Atlantic.
In the UK Mail, Connie Yates and Chris Gard assert that five world specialists have recommend their baby receive the experimental treatment they have long sought.
Pope Francis, who has taken a personal interest in the fate of Charlie Gard, has proposed to give him a Vatican passport. Great Ormond Hospital said they denied the transfer for legal reasons.
Jonathan Montgomery, a professor of health care law at University College London, said: ‘This is not a case where Charlie’s parents have not been listened to. “We are not bad parents, we are devoted to him”.
It is chilling that the United Kingdom court is allowing the London hospital to deny the family this option, or even the option to bring Charlie to spend his last hours at home.
“Back in the United States, I got to know Charlie’s mother, Connie, over the phone and via email”.
Great Ormond Street Hospital insists further treatment will do no good and Foreign Secretary Boris Johnson says it would be impossible to transfer Charlie to another hospital, according to BBC. Courts have already ruled the hospital can pull the plug, against the parents’ wishes.
“Not only that, but they said it would be futile and would prolong Charlie’s suffering”.
As the state-approved “doomsday clock” moved closer to midnight for Charlie, Maria Tatalovic pleaded for President Trump to intervene and keep the baby alive.
The pope expressed support for the parents and Donald Trump wrote on Twitter that the USA would do anything it could to help. He was given less than two months to live beforehand, and the treatment has prolonged his life for years, but he can’t walk, needs a ventilator to breathe, and is fed through a feeding tube. “We need to start saving lives. hopefully starting with Charlie”. “My wife and I believe that little Charlie Gard should be given a chance, because we believe there is hope”. Doctors initially did nothing for the child until his parents, Peter and Emma Smith, researched various treatments and found nucleoside bypass therapy, which is administered in the form of oral medication.