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Baby with ‘fatal’ brain tumor will live, doctor says
Posted On Oct 15 2015
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After their two month old daughter Abigail was found to have a brain tumor, Erika and Stephen Jones were told to take her home and love her. “If she dies, I don’t want it to be in plastic box in a hospital NICU”, mom Erkia told ABC News.
The Jones family took photos and planned Abigail’s funeral only to find she was eating and gaining weight. And she has a future and we’re starting to dream for her and make plans and no longer looking at her thinking about her death.
That’s when the Jones’ made a decision to hop on a plane to grab a second opinion from physicians in Boston. “Treatment basically wouldn’t effect the outcome (meaning they thought she’d die anyway)”.
Erika said: “She was certainly not in any way, shape or form dying”. The tumor was not cancerous.
“There are sometimes tumors that look malignant, but are not malignant”, Boston Children’s Hospital Neurosurgeon-in-Chief Dr. Alan Cohen said.
Erika told WCVB that she couldn’t believe it when Cohen came out to tell the family the good news.
Abigail and her family remain in Boston for follow-up care after she was released from BCH Monday. “She had a new life now”. But that all changed in just 4 short weeks when the portion of her brain that was affected appeared “massive”. She watches your face, tracks it with her eyes. So very thankful. Prayers to the children and families still there. He spoke to Erika over the phone and urged her to carry the baby in to get a few further scans and not to accept the death sentence that was given to their thriving daughter. “They told us that this was one of 3 types of tumor, all aggressive, cancerous, and fatal”. ‘[The Jones family] contacted Boston Children’s Hospital and Mark Kieran, chief of neuro-oncology, and I reviewed the MRI and thought the tumor actually might not be malignant’. “We operated on Abigail through a left frontoparietal craniotomy and removed the tumor, which, in fact, was benign”. “Praising Him this morning!” To tell you how you are a living testimony of healing.
