Let Charlie’s parents say their goodbyes the way they want to

Today, Chris Gard suggested that based upon the assessment of the doctors, they believe their son could have been saved if he were given the experimental treatment at an early stage of life, and said “a whole lot of time has been wasted”.

Barrister Victoria Butler-Cole, who represents a guardian appointed by the judge to represent Charlie’s interests, supported Great Ormond Street’s position. “It seems really upsetting, after everything we’ve been through, to deny us this”, his mother said.

3 March 2017: Mr Justice Francis starts to analyse the case at a hearing in the Family Division of the High Court in London.

“We are now in July and our poor boy has been left to just lie in hospital for months without any treatment whilst lengthy court battles have been fought”, the parents’ statement continued. Charlie did have a real chance of getting better.

High Court judge Nicholas Francis gave 11-month-old Charlie’s parents and the hospital that has been treating him until noon Thursday to come to terms on an end-of-life care plan for the infant’s final hours or days.

Mr Armstrong told the court: “We return to the court for perhaps the most hard, emotional part of this case – the circumstances in which Charlie’s passing will be conducted”.

Armstrong also said that contrary to the hospital’s claims, it had actually put up “obstacle after obstacle” to bringing Charlie home.

“We can’t see what the problem is”, Armstrong told the judge.

The two charities share the same chief executive and media team and trustees – such as Mrs Butler-Cole – can only sit on one charity if they support the aims of the other. It was indicated that the judge is leaning towards sending the baby to a hospice- an option supported by the hospital and preferred by the parents to a hospital death.

Bambino Gesu hospital had offered to treat the 11-month-old while his parents were trying to persuade British courts to tell a London hospital to release the boy for treatment in the United States. Worldwide attention, followed by death threats Both President Trump and Pope Francis backed the fight by the Gards to pursue an experimental treatment for Charlie. They raised more than $1.5 million for his medical care.

But they said Charlie’s parents were still in dispute with doctors over the detail of care plans.

He said the couple felt there was a “brutality” in taking Charlie to a hospice.

“If further treatment may no longer be worthwhile, Charlie’s life is inherently worthwhile, having the dignity and irreplaceability of every human life, and this will remain so even in the coming days”, it said.

They have now returned to court to ask Mr Justice Francis for permission to move Charlie to a hospice where they can spend his final days together.

She said medics wanted to avoid hazards or mishaps and wanted to ensure Charlie was safe. He and a group of doctors examined Charlie last week and gave their expert opinions to the judge.

Charlie’s parents subsequently failed to overturn his ruling in the High Court, Court of Appeal and Supreme Court in London. The court battle began in March. We wanted Charlie to have the chance …